Emma Bonser is the Chief Executive Officer of Genetic Alliance Australia, a national peak body representing people and families affected by less common, rare and undiagnosed genetic conditions. She brings more than 18 years of experience across the NGO, not-for-profit and life sciences sectors, with work spanning Australia, New Zealand and Asia.
Emma works closely with governments, researchers and funders at state and national levels to improve timely access to diagnosis, responsive care, community connection and targeted support, while ensuring lived experience meaningfully informs research, funding and emerging innovation. She brings extensive experience advising on genomics, rare disease policy and research investment, with a strong focus on translating innovation into meaningful, real-world benefit for patients and families.
Her work centres on embedding lived experience in system design, partnering with communities, particularly those affected by ultra-rare conditions who may not be formally connected to condition-specific organisations, to help shape research priorities, funding decisions and care pathways that support people across the full continuum of care.